1 hour ago · 6 min read1110 words · Life · hide · 0 comments

Over the past year or so my fatigue has been getting significantly worse. It’s almost always brought about by post-exertional malaise, which is one of the keystone symptoms of ME/CFS, which has no known treatment, just mitigations at best. And the core mitigation is to not overexert oneself.This presents a problem, as there are so many things I’d like to be doing, and even taking care of my basic day-to-day needs already puts me right up at my limit most of the time, and often pushes me over.It has me thinking quite a lot about what I need to go on. Things that are helpfulI need to know that the things I’ve done have been worthwhile, and that there’s a reason to keep on doing the things I’m doing.Things that would make a huge impact along those lines: Knowing that people are listening to my music, and sharing it with others Feeling appreciated for the things that I’ve done, and anticipation (but not demand) for what’s coming next Having fatigue makes it difficult for me to do a lot of…

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