23 minutes ago · Life · hide · 0 comments

Didn’t sleep too well, pretty tired today. This has definitely been a recovery week. What ME/CFS is, and how it’s wrecking me ‌(30:36) Of all the people talking about their chronic fatigue this is probably the closest to my experience, though everyone has it different and there are plenty of things that don’t match. Definitely worth watching if you want a sense of what I’m going through. The biggest issue for me has always been how boring it is. I decided a year ago I wouldn’t let that stop me recording my CFS life here because it’s too easy for people in my situation to become invisible (the total silence from politicians about Long Covid has been somewhat horrifying) but I am very aware that those bits at the top of each entry can get a bit relentless. I’m slightly intrigued by this notion that I might have always had it in a mild form and it just recently became disabling thanks to the triple whammy of Covid, stress and grief, but I’m taking that with a pinch of salt because so…

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